Participating in RESILIENT
All tests and study-related care will be provided at no cost to you or your insurance provider. Health insurance is not required for participation.
To potentially qualify for the Resilient study, you or your child must:
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Have a confirmed diagnosis of SMA
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Be between the ages of 4-21
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Be currently taking nusinersen, risdiplam, and/or have received onasemnogene abeparvovec-xioi
If you meet the criteria and you are interested in the Resilient study, make a list of questions and either start by talking to your current SMA treatment provider about participation, or use the Contact Me Email Form below to be contacted by a trial site location closest to you.
Contact Us Email Form
Best Contact Phone Number
Your information has been submitted!
As participation in the study could entail long-distance travel for you and your family/caregiver, coordination, and coverage of expenses, including ground and/or air transportation and hotel, may be available.
All tests and study-related care will be provided at no cost to you or your insurance provider. Health insurance is not required for participation.